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Patient Education Guide

In partnership with Lanmark360, we have developed a patient education guide as a result of identifying an unmet need in the medical and pharmaceutical communities.

Understanding and managing Duchenne muscular dystrophy: A guide for families contains just fewer than 20 pages of essential information that will take families of newly diagnosed children through the DMD journey. It provides readers with an overview of what they can expect to learn, a definition of DMD, the five disease stages, symptoms, steps that physicians take to reach diagnosis, treatment and management, and additional support.

To disseminate this guide to as many patients and caregivers as possible via the medical offices of endocrinologists and other physicians, JAR of Hope is in constant communication with orphan drug manufacturers and pharmaceutical companies in the DMD space. Our objective is to partner with a sponsor who’s just as dedicated as we are to find a cure that will save the lives of children with DMD and give hope back to their loved ones.

To receive a copy of our patient guide, please contact us at info@jarofhope.org.