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SIGN A VIRTUAL PETITION FOR EQUAL JUSTICE FOR NJ CHARITIES

Equal justice for Charities: allow Charities to sell raffles tickets on-line in NJ

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We need to change the laws stopping Charites from selling raffle tickets online. 


You can: bet on a horse, baseball game, football game for profit but you CANNOT purchase a raffle ticket online through a charity website for a game of chance to help save a child’s life!! 



New Jersey is the unquestionable leader when it comes to land-based gambling on the East Coast and has more legal gambling options than any other state. Residents and visitors of the Garden State can choose between dozens of live and online casinos and sports betting sites (as stated on the https://www.letsgambleusa.com/new-jersey/).

Most of the high-profile gambling establishments are located on the Atlantic City Boardwalk, but it’s worth remembering that New Jersey also has several pari-mutuel racetracks on the outside. The state allows charitable gambling and has its own lottery. New Jersey was the second state to regulate its intrastate online gambling market, which means that the local gambling enthusiasts are free to get some licensed casino and poker action without having to turn to offshore iGaming sites.

With all this said, NJ does not allow charities to sell raffle tickets online. Why? Because their statute was written in 1950 and the Internet did not exist then. Furthermore, the statute does not say a charity cannot sell raffle tickets online, It is the interpretation of the statute by the NJ AG’s office that prohibits charities from doing so.


I am asking you to sign this petition so we can change the law to allow all charities in the state of NJ to sell raffle tickets online. Given the circumstances we are navigating through and are currently in during this COVID pandemic, we are unable to gather together to raise money for causes near and dear to our hearts and for these individuals, our loved ones, who are most in need of our help at this time.


PLEASE SIGN THIS PETITION!


The solution is to change the statute. JAR of Hope has hired an attorney to help fight this in court and has enlisted the help of Congressman Chris Smith and Senator Thompson to help us make the change that is so gravely needed. However, your signatures are imperative to move this along in the process. Once this statute has been overturned, ALL Charities in the state of New Jersey will have the opportunity to raise funds through online raffle ticket sales, not just ours. This will be a victory for the thousands of charities that exist in the State of New Jersey. 


Currently, the NJ Attorney Generals office has stopped JAR of Hope from selling raffle tickets online for a 2020 convertible Mustang that was donated by All American Ford in Old Bridge, NJ. This dealership has given us an incredible gift that is so generous and desperately needed at this time, 100% of the proceeds raised by ticket sales would be used to fund research for terminally ill children. Currently, 11-year-old Jamesy Raffone of Manalapan, 15-year-old Martin Cintron of Perth Amboy and dozens of other children living with Duchenne Muscular Dystrophy are suffering from this awful disease and need these tickets sold to fund an experimental drug treatment that just might save their lives. Please sign and share, we will do the rest.


PLEASE SIGN THIS PETITION!

The Towncast – Jim shares his journey up Mt. Everset

08 Apr, 2024
Jim shares his journey from learning his only son has Duchenne Muscular Dystrophy to running 10 marathons including running over 300 miles from Massachusetts to New Jersey, doing push up around the world and climbing Mt Everest, all to bring awareness to and helping find a cure for this terminal disease.

JAR of Hope team climbs Mt. Everest to save the first child

07 Apr, 2023
Nebraska man joins fight against Duchenne muscular dystrophy

Franklin Square kickboxing marathon raises money toward Duchenne muscular dystrophy research

06 Apr, 2023
Originally posted on Newsbreak

JAR of Hope presents National Pushup Campaign to all students

29 Mar, 2023
Will you accept this challenge Millstone Twp. & Upper Freehold Regional School Districts? 

Italfarmaco Group Announces Positive Topline Data from Phase 3 Trial Showing Beneficial Effect of Givinostat in Patients with Duchenne Muscular Dystrophy

21 Feb, 2023
-- Study meets primary endpoint with secondary and exploratory endpoints showing consistency with primary endpoint -- -- Data reinforces previously observed safety profile for Givinostat; treatment in boys with DMD continues to show a good tolerability profile -- -- The company is planning to discuss the potential for marketing application submission with regulatory authorities for Givinostat in DMD -- -- Results were presented at the Annual PPMD Conference on June 25, 2022 -- 

Hyperbaric Oxygen Treatment (HBOT) Study

24 Jan, 2023
Hypoxia as a Modulator of Cardiac Disease in Duchenne muscular dystrophy by Dr. DeWayne Townsend Jamesy is one of the first children with Duchenne muscular dystrophy to undergo HBOT treatment. Through this study, his marked improvements have led to the first ever hyperbaric pre-clinical trial to be hosted by the University of Minnesota. The launch of the HBOT research is a primary focus of our current fundraising efforts. The findings may provide the vital information needed to prove the clinical efficacy of oxygen therapy, and could lay the groundwork to make this treatment available to all children suffering from Duchenne. The goal of the HBOT study is to enable these children to walk for as long as possible, until a cure can be found.

JOIN US ON A “WALK FOR THEIR LIVES”

24 Jan, 2023
Joe Ippolito (our Treasurer) and I will be taking a 260-mile “walk” next month. A “Walk For Their Lives,” to be exact, from Washington, D.C. to Old Bridge, to raise awareness of Duchenne Muscular Dystrophy. Yes, you heard me right – from D.C. to NJ. By now, you know that kids with Duchenne are in wheelchairs by their early-teens. Breathing through ventilators by their late-teens. And that there is no cure. But we want the rest of the world to know, too. So Joe and I will be driving to Washington with our families, and they’ll drive back home while we “Walk For Their Lives.” We will start on Columbus Day, Oct. 12. We’ll be walking 33-35 miles a day and camping out each night. On the night of Sunday, Oct. 18, we’ll be camping out at Sportika in Manalapan Township. And the next day, we will walk the last 26.2 miles (the length of a marathon). We will stop at the last sponsored checkpoint at All American Ford Old Bridge. Then it is on to the finish line at Lombardi Field in Old Bridge (near Old Bridge High School), where Mayor Owen Henry and Congressman Chris Smith will greet us. And we would love for you to join us! Please feel free to join us anywhere along the route, and to leave anywhere (although you are invited to the Finish Line for the ceremonies!) Our “Walk For Their Lives” will be sponsored by All American Ford in Old Bridge, and we’ll wind through Maryland and Pennsylvania before New Jersey. Our goal is to raise $50,000+ toward a cure for Duchenne Muscular Dystrophy…so that no parent will ever again have to hear the news that Karen and I heard seven years ago. Please join us! It will be a joy to see our friends and neighbors as we head toward the finish! For the latest updates, please follow our Facebook group, D.C. to All American Ford – Team Jamesy 24/7 . To donate or to become a fundraiser, please visit the Donation Page . -Jim Raffone

JAR OF HOPE FOUNDATION BRINGS SICK YOUNGSTER TO UNITED STATES FOR TREATMENT

24 Jan, 2023
It’s not easy to get a little Irish boy with a fatal illness to the United States for medical treatment, especially during COVID-19. But JAR of Hope has done it.  Alfie Pentony, 7, lives in Northern Ireland with his parents, Colleen and Jamie, and two brothers, according to a press release from JAR of Hope.

WIN A 2020 FORD MUSTANG CONVERTIBLE

24 Jan, 2023
JAR of Hope and All American Ford are raffling off a brand new Mustang convertible to help fund a cure for Duchenne Muscular Dystrophy

H360 HEALTHTALK: JIM RAFFONE | JAR OF HOPE

24 Jan, 2023
Dave is a business and technology strategist for the pharmaceutical and healthcare industry. With a heritage in healthcare marketing, communications, and technology, David has worked with pharmaceutical companies, the medical profession, research organizations and patient groups for over 20 years, completing various types of marketing and strategy projects across almost all disease areas. David founded healtheo360 in 2013 after his sister-in-law was diagnosed with stage IV breast cancer and his mother with Alzheimer’s disease. After unsuccessful efforts with other support groups, due in part to the widening age gap between members of these groups, the family was forced to search for other outlets of social support. In response, healtheo360 was started. Visit them here. 
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